Too long

Too long without an update or a hello here!

I’ve spent much of each day, for a year or more, sedated. This comes from taking my meds as directed: 20mg fluoxetine, 400mg quetiapine each morning. (Then 200mg quetiapine and 500mg of valproate each evening.)

I’m holding down a stressful job, 3 days a week. And it was tough, doing this with a muddled brain that wants to lie down and take a nap every half hour.

It only occurred to me on Monday that I could take all of these meds in the evening, a couple of hours before sleep-time (except the fluoxetine, which is better taken in the morning it seems). So I did this and there was a huge difference immediately! Doing my job whilst awake was a revelation and it also seems to have helped my  anxiety a little too. I have more energy in the daytime too.

Of course, these evening meds should be knocking me out for 10 hours (there are people on Twitter who say 25mg of quetiapine will do this for them). But no, I still haven’t slept right through the night even once in decades.

* * *

I finally got to have my annual blood tests to monitor my meds. A year late. The results were in this week: all ‘normal’ except for my cholesterol, which has always been high, genetically. They were almost 7 before starting the meds and I was quite pleased that they’re ‘only’ 8 now. I was expecting double figures. My GP looked a bit concerned though. My blood pressure is a little high, nothing to write home about. My weight is too much; I’ve put on 2st in the past 2 years+ since starting bipolar meds.

So I agreed to start taking Simvastatin 20mg in an effort to lower the cholesterol level and took the first one last evening. Watch this space..

 

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Those manic moments

A few things I’ve done whilst manic:

 

  1. As a young child, had a ‘vision’ that Jesus had leprosy. Also, at nursery school, had another ‘vision’ with depersonalisation.

 

  1. As a teenager, had other religious ‘visions’ including psychosis.

 

  1. As a teenager, the planet Venus told me (in compressed time) the philosophy of Plato’s ‘Symposium’.

 

  1. Got married. (It didn’t last.)

 

  1. Bought a one-way flight ticket to India. (And used it.)

 

  1. Been a total slut.

 

  1. Marched up and down the living room wielding a large kitchen knife, frequently stabbing the dining table.

 

  1. Had various delusions, most of which I still have (to some extent) despite meds.

 

  1. Bulk bought: cheap wristwatches; USB pen drives; clothing; etc.

 

  1. Written what I estimate to be more than a million words since my teenage years: fiction (several novels), poetry (thousands – many published), reviews, plays, etc.

 

  1. Wrote a 70k word autobiography in two weeks at the age of 20-ish despite nothing actually having happened in my life at that point.

 

  1. Made 20+ ensō paintings in 10 mins or so (total). The lawn was covered with them.

 

  1. Driven up to the Black Mountains obsessively, 3x a week for a couple of months.

 

14. Danced on a table in the staff room at lunchtime. No-one seemed to notice.

 

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Weight one moment

I take three different meds to control my bipolar disorder and they all cause significant weight gain. I’ve had to make a decision whether to spend my life ‘fat or mad’, with the only realistic option being ‘fat’. I’ve put on over two stones in a couple of years.

As  if I didn’t have enough problems already.

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A testing time (again)

The next 10 days are really going to test my mental (and physical) strength and resolve. Bipolar mood swings can be rapid and unpredictable. Stress is one of just several things that can cause depression, hypomania – or mixed mood.

I’m not a sociable person. Though I have done many poetry readings without stress, the thought of having to take a school Assembly this coming week is beginning to hit me. I could probably get out of it but I’m going to give it a go if at all possible.

And during the week after this coming one we have a re-Inspection; this is without doubt the most stressful time for any teacher. During a previous inspection, in a different school, I worked a 92 hour week leading up to it.

These two things really aren’t going to put anyone with a mental illness in a good frame of mind. Consciously, I’ll do my best to, well, do my best. But I’m not in charge of my bipolar with its depression, hypomania, OCD, anxiety and often dissociation.

I’ll see you on the other side..

 

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Been a while..

No news, as they say, is good news. And in this case, that’s correct.

I’ve been pretty stable all through the Christmas season. Minimal suicidal ideation, a little anxiety, some [bipolar] dissociation, and the usual (relatively) low-level OCD.

That’s how unpredictable mental illness is; a renowned ‘stressful’ time can have little effect, whereas a ‘manageable’ time can see symptoms escalate wildly.

The meds are working, it must be said. Talking therapy would be useful, but that’s not going to happen.

I’ve even been tempted to begin writing again (a 4th P.I. Wall crime novel) but I’m not painting; there has been some collage work and poem-writing however.

Work can be very stressful, especially with us waiting on ESTYN to re-inspect us.

I continue to become physically less fit, and the meds are still making me put on weight. Swings and roundabouts, I guess.

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Progress, or lack of such

To be honest, I thought I’d have seen more progress by now. Three years after CBT started (it lasted about 8 months) and just over two years since I began taking meds. These have changed and dosages upped several times to where they remain steady at the moment. Daily: 600mg quetiapine, 20mg fluoxetine, 500mg sodium valproate.

And yes, they’ve topped and tailed my more extreme moods. In that respect there’s been significant progress. I still get frequent – and fleeting – suicidal ideation, but I don’t have the strength and wherewithal to actually do anything about it. I tend to ere on the side of caution and add ‘yet’ to that statement. It wouldn’t do to think I’m cured. I know there’s going to be no such thing.

So two years.. I’m holding down my job and – I think – doing well at it. My team gives me some support by way of accepting and dealing with my many cognitive and memory issues that pop up daily more than once.

I have no-one to talk to about my illness; at least, not in detail. Twitter remains a source of support, albeit from people I’ve never met and never will meet. There are loads of us on there exposing our souls and craving help and attention. Whenever it’s good to talk, Twitter offers a (usually) one-directional ‘conversation’ outlet. I have no input from my GP or any other medical service. I saw a psychiatrist last before the summer but that was only because my GP referred me due to a down-turn in moods. I have no future appointment set.

It would be interesting to see if I could hold-down a relationship at this point in my treatment. Bipolar destroyed all the romantic relationships I’ve ever had, and I still feel so bad about that. Some of these were good for me, and I let them go through my – admittedly uncontrollable – moods. As it stands now, three years since talking therapy began and just over two years since meds started, I have no such relationship. Indeed, I’ve not had a girlfriend (or even a date!) in two and a half years. That’s the meds for you; I’ve been stripped of emotions, feelings, libido and effort. I create no writing work, and barely any art work – the things that I’ve always done and done well.

I don’t really live; I exist. And even then, there are occasions when I get hypomanic and don’t even believe that. I exist with moods and delusions, my physical health has taken a hard knock (illness and meds) and I generally ache all over 24/7. I still don’t sleep. My short term memory is f*$*&d, basically. I’ve put on a couple of stone in weight since starting the meds but from looking at other people’s experiences I could have put on an awful lot more. Who knows, maybe I will? I’ve had to get rid of a load of clothes and start acquiring from scratch. (Though that’s actually been quite therapeutic!)

The biggest shock to me lately has been a letter from the Pensions people; I still have 9 more years to work in this stressful job. Until I’m over 66. How the hell’s that going to happen? I’m living day to day. Small mercies.

 

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When it happens, it will be

 

When it happens.

 

 

I will die on a Sunday, when the crisp
web of a dewy morning sparkles,
heavy as rope.

It will rain, and its perseverance will
hammer heavy on my soul.

I will die on a Sunday, and Monday
will be empty but for a silence; a
sadness that evades sentiment but

evokes melancholy amongst the few.

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